“Families caring for loved ones with Prader-Willi syndrome face unique and significant challenges,” said Rep. La Ha. “Right now, some individuals with this condition are being denied critical resources simply because the law doesn’t clearly recognize their needs. They deserve the same support and services as others with developmental disabilities.”
The bill amends several key state laws to explicitly include Prader-Willi syndrome within the definition of developmental disabilities. If passed, HB2541 would require the Illinois Department of Human Services (IDHS) to recognize Prader-Willi syndrome as a qualifying condition for access to essential services such as home-based care, community support, and specialized treatment programs.
Prader-Willi syndrome is a rare genetic disorder that affects physical growth, metabolism, and cognitive development. It often leads to lifelong medical and behavioral challenges, including difficulties with impulse control, intellectual disabilities, and an insatiable hunger that can lead to severe health complications. Families caring for individuals with this condition require specialized support, which HB2541 ensures they can access.
If enacted, HB2541 would:
- Ensure Prader-Willi syndrome is recognized as a developmental disability in all Illinois laws, rules, and state programs.
- Expand access to state-supported developmental disability services, including in-home care, community-based services, and residential support for those with Prader-Willi syndrome.
- Provide clarity and consistency in eligibility requirements, preventing future misinterpretation of the law by state agencies.