“Alzheimer’s disease affects countless families across our communities, and it’s vital that we stand together in support,” State Representative Brad Stephens (R-Rosemont) said. “From advancing research to providing meaningful support for caregivers, we’re dedicated to making a difference. By increasing awareness and resources, we can bring hope and strength to those impacted by Alzheimer’s.”
Alzheimer's, a progressive disorder that causes memory loss, cognitive decline, and behavioral changes, is the most common form of dementia. It accounts for 60-80% of all dementia cases. While it primarily affects older adults, its ripple effects extend much further. Families and friends bear witness to the gradual changes, often taking on the role of caregiver. It is a challenging road, both emotionally and physically, with many caregivers in Illinois experiencing health conditions or mental health struggles due to the toll of caregiving.
In Illinois alone, approximately 311,000 family members serve as unpaid caregivers, devoting nearly 480 million hours each year to support their loved ones. Their work, while invaluable, often comes at a high personal cost. Many caregivers face exhaustion, depression, and financial strain as they attempt to balance their lives with the constant care demands of Alzheimer’s. And while these caregivers pour their hearts into their roles, their efforts represent an estimated economic contribution valued at over $9.8 billion annually.
The economic impact on the state is equally staggering. In 2020 alone, Illinois’s Medicaid costs for people living with Alzheimer’s reached $1.787 billion, a figure that is expected to increase by 23.4% by 2025. These rising costs show a system struggling to manage the growing demand for care, resources, and research, underscoring the importance of comprehensive and compassionate policy action.
State Representative Patrick Sheehan (R-Homer Glen) served as a chief co-sponsor for SB3318, which passed unanimously in the House. This legislation makes key adjustments to improve healthcare coverage for those impacted by Alzheimer’s Disease or related dementia. Starting on July 1, 2025, the bill requires that any FDA-approved treatments or medications prescribed to slow Alzheimer’s progression be covered under the State Employees Group Insurance Program. Additionally, the bill prohibits the use of "step therapy" for Alzheimer’s treatments, meaning patients can access prescribed therapies directly without having to try other, less effective options first.
Illinois is home to three regional Alzheimer's Disease Assistance Centers, which serve as important hubs for care and research. The Northwestern Alzheimer’s Disease Assistance Center at Northwestern University Feinberg School of Medicine, the Rush Alzheimer’s Disease Assistance Center at Rush University Medical Center, and the Southern Illinois University School of Medicine Center for Alzheimer’s Disease and Related Disorders provide essential services across the state. These centers offer diagnostic evaluations, treatments, referrals, and conduct cutting-edge research that drives advancements in care and understanding.
Rep. Stephens added, “As we continue to raise awareness about Alzheimer’s, we must remember the individuals and families facing this daily battle. It’s a personal journey that changes the lives of so many people. We’re committed to supporting research, resources, and compassionate care for those affected, as well as empowering families with the tools they need to navigate this challenging road.”
Alzheimer’s disease challenges us as a state and as a society. But Illinois’s communities, healthcare providers, advocates, and policymakers have shown a commitment to understanding, supporting, and fighting against this disease. By raising awareness, fostering understanding, and expanding resources, we can offer hope to every individual and family affected by Alzheimer’s.